| کد | mv-46946 |
|---|---|
| عنوان | Torey's Distraction |
| نویسنده | Tisha Blood |
| کارگردان | Tisha Blood |
| بازیگران | Randall C. Harrah |
| بازیگران | Landrieux Harrah |
| بازیگران | Quentin Harrah |
| نوع | مستند |
| محل تولید | USA |
| سال تولید | 2009شمسی |
| زبان | انگلیسی |
| زیرنویس | ندارد |
| معرفی اجمالی |
Filmmaker Tisha Blood follows three girls with a rare craniofacial anomaly called Apert Syndrome over the course of 10 years providing an intimate glimpse into the transforming powers of science, family, humor, hope and compassion. What if you gave birth to a child with a rare genetic defect? Would you let nature take its course or would you do all you could to give your child a normal life? Recent medical advances are saving the lives of children born with Apert Syndrome, but to live a normal life one must look normal and this is where the journey of Torey's Distraction begins. Chronicled over a period of 10 years, the film follows Torey, Emily and Saige - all children born with Apert Syndrome - a rare genetic condition that causes craniofacial anomalies and skeletal mutation. Blood's directorial debut provides an intimate glimpse into the transforming powers of science, family, humor, hope and compassion. داستان فیلم در مورد سه دختر مبتلا بیماری نادر به نام سندروم تخمدان پلی کیستیک شده اما برای داشتن یک زندگی نرمال، آن شخص باید طبیعی به نظر برسد. |
| تاریخ ثبت در بانک | 19 مرداد 1400 |