| کد | mv-46577 |
|---|---|
| عنوان | A Day in the Life of Felix |
| کارگردان | Anthony Straeger |
| نوع | مستند |
| محل تولید | UK |
| سال تولید | 2008شمسی |
| زبان | انگلیسی |
| زیرنویس | ندارد |
| معرفی اجمالی |
Nemaline Myopathy is a rare form of muscular dystrophy. This film documents how one boy deals with it on a day to day basis. Born in April 1999 with a rare form of muscular dystrophy condition called Nemaline Myopathy. Felix has the severest form and is on a ventilator, tube fed, uses a power wheelchair and has a whole set of issues arising from his profound muscle weakness. This film highlights Felix and his families day to day difficulties living and dealing with his circumstance. میوپاتی شکلی نادر از ضعف عضلانی است که در این فیلم نشان داده میشود. که چگونه یک پسر بچه هر روز با این بیماری دست و پنجه نرم میکند. |
| تاریخ ثبت در بانک | 5 مرداد 1400 |